The Universe Gifted Me a Special Needs Son
Photo Credit: U Shine Photography- Jill Skoglund

The Universe Gifted Me a Special Needs Son

The universe gifted me a special needs son. He has a presence about him and is a bright light on my darkest days. The days I have lost all hope, he reminds me to keep fighting. He is also the reason for my heartaches and my sleepless nights.

Special needs means a special kind of love.

I never thought I would be here and there are days I don’t want to be, but I am. I am here raising a son with special needs. My brainstorming never stops. The researching never ends. I am fighting for my son with a special kind of love.

I am busy scheduling what feels like a million therapy appointments each week. Juggling his schedule with our 3 ½ year old and our four month old. I am attempting zoom therapies because of this damn pandemic. Some days I wear the hat of a speech therapist, a physical therapist, or an occupational therapist without the training and education.

The Fight Never Ends

I stay busy fighting with the insurance company as to why genetic testing is not covered and considered a necessary test for the wellbeing of our special needs son. I am carefully planning out clinical therapy appointments because insurance will only cover a certain number each year, and the out of pocket costs are astronomical. Thankfully we can cover the costs of clinical therapy appointments, but it takes a toll on me mentally. Carefully planning therapies, paying our nanny who has become family, and providing for our other two children.

Some days I am forced to choose between making dinner and letting my son scream and throw himself on the floor. Other days, dinner waits and he enjoys a warm bath to help calm him. Most days I am overwhelmed, exhausted, and questioning everything I know about being a mom and raising a son with special needs.

He Chose Me

Each and every day though I am thankful that he chose me to be his mom. Each day I am growing stronger and more courageous. Every time I choose to speak up for him or reach out for help I am fighting for him.

I know his light will always shine.

His path might be unconventional, but with me by his side we will fight.

I am here raising a special needs kid. A place I never thought I would be, but I am.

Emily Jorgensen

Emily's roots will always be in Michigan, but she loves being able to call Colorado home. She has been married to her hunk of a husband for four years and they have two of the most amazing children. She believes in showing up for each other. Showing up to share the real, ordinary, and extraordinary parts of life. She thinks the three most beautiful traits a human can possess are grace, rawness and vulnerability. When people possess those traits and if they are willing to do the hard work of leaning in, feeling uncomfortable and owning their stories, they can find their true purpose. When Emily started doing the hard work, she came to the realization that her purpose was to serves others, while giving grace. When people are fully granting grace to others, they are loving them without judgment and accepting them for who they are at that exact moment in time. When people do those two things, they are able to truly show up for each other. It might be hard. It might take courage, but it is the most important thing people can do for each other.

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